- Global Down Syndrom Foundation -A public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy.
- Rocky Mountain Down Syndrome Association – Provides information and support to parents (e.g., prenatal diagnosis, postnatal diagnosis, infant, toddler, adolescence, teenager, and adult). RMDSA also provides resources (e.g., IEP consults, community support groups, etc.)
- National Down Syndrome Congress – New and expectant parent information, education, speech and language resources, health care, family toolkits, policy and advocacy, and more.
- National Down Syndrome Society – The leading human rights organization for all individuals with Down syndrome.
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